I am a patient of life, learning to live in spite of chronic illness. This is not my personal blog but occasionally I will tell you personal facts about my life. Please respect my need sometimes to maintain a distinction between the two. I am not lupus; I have lupus.
Reasons this blog exists:
May is Lupus Awareness Month. This is a way to be more involved by sharing my experiences. I'm going to get real with you and hopefully find and give some solace to others in the patient community. Anyone is welcome; you don't have to have lupus to understand the tumult of navigating a world that is dictated by your physical capabilities and unfortunately, the lack thereof.
I am also inspired by a fantastic book by Laurie Edwards, "Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties." Highly recommended.
Catching Elephant is a theme by Andy Taylor
GPOY
(Source: dailyfrenchie)
Get in the Loop – Raising Awareness for Lupus
I’m really confused why this infographic has a fucking dog as a “celebrity affected by lupus.”
![chronicillnesscat:
[Image: 6-piece blue colored background with a Siamese cat. Text on top reads: “Intake form says: ‘describe your overall health’” “You laugh uncontrollably”]After I was done laughing I didn’t know what to honestly fill in to boot!](http://24.media.tumblr.com/tumblr_m3znq4Zr2P1qi36g3o1_400.jpg)
[Image: 6-piece blue colored background with a Siamese cat. Text on top reads: “Intake form says: ‘describe your overall health’” “You laugh uncontrollably”]
After I was done laughing I didn’t know what to honestly fill in to boot!
![chronicillnesscat:
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Your completely legit medical excuse: I slept through my alarm”]
Even though it is caused by genuine health reasons, I still find it really embarrassing to have to apologize to my teachers or my teammates for being late. I can follow it up with “I’m sorry, it’s because of my illness/the side effects of my medication”, but unless I elaborate on my entire medical history, it still just sounds like “sorry, I hit the snooze button one time too many”.](http://25.media.tumblr.com/tumblr_m3r7kfqFDk1qi36g3o1_400.jpg)
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Your completely legit medical excuse: I slept through my alarm”]
Even though it is caused by genuine health reasons, I still find it really embarrassing to have to apologize to my teachers or my teammates for being late. I can follow it up with “I’m sorry, it’s because of my illness/the side effects of my medication”, but unless I elaborate on my entire medical history, it still just sounds like “sorry, I hit the snooze button one time too many”.
![chronicillnesscat:
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Wash down stimulants with a cup of coffee. Go back to sleep for eight hours.”]
This is what happened the day I started my prescription stimulant meds for my daytime sleepiness…](http://24.media.tumblr.com/tumblr_m3r7wfzLZu1qi36g3o1_400.jpg)
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Wash down stimulants with a cup of coffee. Go back to sleep for eight hours.”]
This is what happened the day I started my prescription stimulant meds for my daytime sleepiness…
A Haiku About Getting Out of Bed
No No No No No
No No No No No No No
No No No No Novia nerdgeekdweeb
I made this for that facebook group i posted about yesterday, because we were talking about this :)
i mean i complain about stupid shit all the time, so it’s not like i’m on any sort of moral high ground here, but i quite appreciate this.
got quirks?: Patients Like Me
From Wikipedia:
PatientsLikeMe is a data-driven social networking health site that enables its members to share condition, treatment, and symptom information in order to monitor their health over time and learn from real-world outcomes. Members are able to find and connect with patients like…This is utterly beautiful. Last year I kept track of this kind of stuff in a health journal, and I think this will be easier and even more helpful.
I’m added under keepontrying if anybody wants to friend me or follow me or whatever it is you do here… haven’t looked around much yet lol.
(Source: patientslikeme.com)
The affect that pain has on someone…
(Source: chronicillnesscat)
I swallow handfuls of pills multiple times a day. If I had to take each pill singly I’d be there all day.
It is a source of great confusion to me that my boyfriend cannot swallow a single pill. He uses childrens dissolvable Panadol and I just cannot understand it.
I am the pill-taking MASTER
That annoying moment when you can’t open a jar or bottle.
This made me smile and made me realise that I don’t actually eat anything much that comes in a jar any more!
I throw them somewhere and then cry and then clean up the mess.
Check out these “Useful Products” in the shop from the Raynaud’s Association UK… SO NECESSARY FOR MY LIFE. And not expensive! Too bad they don’t ship internationally :[
(Source: flyguy-swag)
