I am a patient of life, learning to live in spite of chronic illness. This is not my personal blog but occasionally I will tell you personal facts about my life. Please respect my need sometimes to maintain a distinction between the two. I am not lupus; I have lupus.
Reasons this blog exists:
May is Lupus Awareness Month. This is a way to be more involved by sharing my experiences. I'm going to get real with you and hopefully find and give some solace to others in the patient community. Anyone is welcome; you don't have to have lupus to understand the tumult of navigating a world that is dictated by your physical capabilities and unfortunately, the lack thereof.
I am also inspired by a fantastic book by Laurie Edwards, "Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties." Highly recommended.